After I was born mummy took me up to the ward and in the night Daddy was admitted to my hospital!!! SCARY!! But we were both well enough to leave the next morning,, mummy was very pleased,,, and shattered.
At one of my checks a doctor told mummy that I had a 'murmur' mummy didn't know what this meant and was quite scared. After a while the doctors told mummy and daddy that I had Subaortic Stenosis,,,,hmmmm even more scared now, but I looked so well they didn't really worry too much.
I have had scans and checks for the past 4 years and now mummy and daddy have been told that I have to have Open Heart Surgery to make my little heart better. The lovely doctor at Cardif Hospital said he wanted to wait until I was about 12 years old,,,as old as my big brother,,,that's AGES away. BUT,,,, there's always a BUT my mummy says,,, the naughty bit of my heart is not behaving and is getting worse, so mummy and daddy think it may be sooner than that.
I run around like a mad man most of the time but I do get a little breathless at times, sometimes I can't keep up with my friends at school, but mummy says that's ok because I'm special.
I am going for my next scan in January and mummy and daddy will find out how my heart is behaving then.
I go to school now, so I am quite tired at night times, but I've always been an early riser and I don't want mummy to get out of the habit so I get up early every morning just for her!!
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