On the list

Mummy got a phonecall today from the lovely lady at Cardiff. The doctors from Bristol have decided that I am to have my heart fixed soon. They have put me on a waiting list............
Mummy will update when she knows more

Got another little problem with my heart

I went to see the lovely doctor Onuzo at Cardiff and he told mummy and daddy that my aortic valve has started to leak, this means he now needs to talk to MORE doctors at BRISTOL to see if they want to meet me now!!!
xxx

Tandem Skydive

Mummy is going to do a tandem skydive to raise money for HEARTLINE, I think she is really brave as she doesn't like heights!!!
You can help her be brave by sponsoring her if you can go to www.justgiving.com/tracysobey

Thank You
Oh mummy is doing this on Saturday 29th August, the day before her birthday xxx

I am 5!!

Had a lovely birthday and a fab party with all my friends, mummy has put some pictures on too!

Really been neglecting this!!

Sorry but mummy has been so busy with work and half term taking car of me and my big brother that she hardly has time to go on the computer!!!!!!!!!!!!!
Nothin is happening much,,, I was in the paper,,,,,,,,,,, search southwalesargus,,,,,,,,,,,,,, rhys sobey,,,,,,,,,,,,
it's my cousins 18th birthdya on sunday so we are all goin out for a meal 2moro xxxxxxxxxxxxx
spk soon xxxxxxxxxxxxx

added few more pics

http://s450.photobucket.com/albums/qq226/Sobes01/?albumview=slideshow

24 hr ECG Results

The results came back and they were good,,, really good!!! no signs of arythmia and all relatively normal heartrates,,,, mummy and daddy are sooooo pleased!!! Dr Onuzo wants to see me again in 4-5 months,,, that will be around the time I am 5 !!!!

Visit from Auntie Vicki

Had a lovely day today, Auntie Vicki came over,,,, we went to Scallywags Castle. Mummy was not sure who had more fun,,, Auntie Vicki and my brother Owen playing TAG, or ME????

Mummy cooked a lovely dinner,,,but Auntie Vicki just had the veggies,,,, she doesn't eat meat?!?!?!?!

Then we took Smudge for a walk,,, in our wellies,,, it was great fun and I picked up lots of sticks to bring home,,,, mummy always gives me a funny look when I do this, but I LIKE STICKS!!!

Fundraising for Heartline & BHF

Mummy had a special day in work today, she raised 400.00 for Heartline and BHF, I am so proud,,,, my big bro Owen says he wants to have his legs waxed to raise money,,,,, hmmmm
I think it will hurt,,,mummy is not sure he is old enough to do this!! LOL

AND mummy and daddy have a VERY special rugby ball to auction also to raise money for Heartline,,, you can see it here!!
http://cgi.ebay.co.uk/ws/eBayISAPI.dll?ViewItem&item=190286657211

I hope they raise lots of money xxxxx

24 Hr ECG

On 16th Feb I have to go to Cardiff to have my ECG Monitor put on, mummy says I have to wear it for a whole day then the doctors have it back and look at the results. Mummy also said I am not allowed to pull it off!!!!!!!! HMMMMMMMMM lets hope it doesnt itch too much then!!

CHD Awareness Presentation

Mummy has done this to talk to the big boys and girls at her school to raise awareness of CHD, she wants to thank all the families on Heartline who made it possible xxx

Hospital Appointment

Hello ,,, mummy is not very good at keeping this up to date is she!! I was due to go into hospital to have my Echo & ECG, but I ended up going in early cuz my heart keeps beating a bit fast. I didn't see the nice Dr Onuzo but a registrar, who was nice too. He did an ECG & ECHO and seemed happy that not much had changed from my last visit. Mummy and Daddy were really pleased about that.
I have got to have a 24hr ECG to see if my heart is goin a bit fast at times thru the day,,, we are waiting for an appointment to go back in.
Dr Onuzo has looked at the ECHO and he is happy to keep me on 6 monthly appts at the moment so that is good news!!! :)

read,, sign,,,, HELP!! click on the link to see video

CHD Awareness
CHD (Congenital Heart Defects) is the number one killer in babies and children, it is more fatal than cancer. As there is still no national awareness in the UK, the majority of people do not seem to know an awful lot about chd, many people are totaly un aware that children and the young can have problems with their hearts, its still mainly associated with something only the elderly suffer from.CHD is an anomaly of the heart that is present at birth. CHD’s cause one or more portions of the heart to develop abnormally.There is no known cause for CHD.CHD is the number 1 birth defect and is the leading cause of birth-defect related death. BUT it is the least publisised of all the known birth defects.CHD strikes without regard to economic level, ethnic origin, sex, geographic location or religious beliefs. Aprox.16,000 infants are born with CHD each year in the U.K yet newborns are still not screened for CHD’s.Some babies may be diagnosed before birth or at birth, some not until days, weeks, months or even years later. Sadly, too many are not diagnosed until after death.There are 1.2 million children and adults with CHD alive today. CHD affects not only patients, but also their entire families too.Please help us to raise awareness by signing the petition HEREIf you are still in any doubt whether or not this is a worthy cause, then please watch this video, I think you will agree these children all deserve a chance .....

Appointment 26th Jan

Mummy has finally received the letter,,, don't know why she stresses so much!! lol
My next appt is in Cardiff,,,,again! with Dr Anuzo,,,, guess its time for:
Jelly on the Belly
See my Heart on the Telly

Mummy is quite scared,,, daddy too,,, oh and don't get me started on Owen, good job I'm only 4 and have no idea what it's all about !!
xxx Happy New Year to you all xxx

Seal Pup Blowing Kisses to Rhys

Mummy took me and Owen to Bristol Zoo with Aunty Vicki, Uncle Paul, Grandad and Lyn, just before Christmas,,, I met a seal pup who loved my gloves and followed them all around the huge tank,,,, grandad got a bit of it on video and I think the seal blew me a kiss,,,,, what do you think???